EMSP's leading figures joined by representatives of our partners and sponsors gathered together on 11 March, at the Dominican Hotel in Brussels, for the annual Networking Dinner.
2014 is a very special year for EMSP, marking our 25th anniversary. This provides the occasion to look back on some of the highlights of EMSP's organisational history. Under the motto "25 years as the voice of people with multiple sclerosis in Europe", President John Golding's (pictured below) introductory speech briefly underlined EMSP's main achievements throughout the years.
EMSP's newsletter for March 2014 looks back at the recent important meetings with stakeholders and also forward towards our Anniversary Conference in Dublin.
The main topics from this issue of the Web Alert:
- Networking Dinner with partners
- The National MS Center in Melsbroek to participate in EMSP's Spring Conference
- Progress in access to DMD treatment in Poland
- The story of an 'MS athlete'
The European Multiple Sclerosis Platform (EMSP) was a leading participant in a two-day conference focusing on brain-related issues - BRAI.NS 2014 - organised on 14-15 February, in Barcelona, Spain.
EMSP's President John Golding and Deputy CEO Christoph Thalheim gave keynote speeches in front of a specialised attendance of more than 500 stakeholders from the fields of neurology, brain disorders and research - university professors, neurologists, EU decision-makers and industry partners among them.
The bid for a Written Declaration for neurodegenerative diseases (NDDs) in the workplace managed to gather 161 signatures from Members of the European Parliament (MEP), which was unfortunately not enough for the document to become an official position of the European Parliament in the context of a very crowded public agenda leading up to the European elections in May.
However, EMSP believes that this was a useful opportunity to highlight the challenges for people with NDDs and that it should represent the starting point of a sustained campaign to ensure proper employment for those living with multiple sclerosis, Alzheimer’s, Parkinson’s or other NDDs.
At a packed roundtable discussion in Brussels, on the 9th of December, representatives of MS societies and organisations from more than 20 countries reinforced the need for up-to-date information on the experiences of people affected by MS in Europe - which could be met through a Pan-European MS Patient Experience Survey.