EMSP’s Annual Conference in Warsaw, Poland hosted, on 15 and 16 May, nearly 150 stakeholders interested in finding the best solutions for ‘Access to employment and participation’ - the main theme of the event.
Conference presentations from both days are available in the full article (to access click on the title).
European Employment Pact, EMSP CEO Maggie Alexander
Launch of MS Nurse Pro in Poland, EMSP President Anne Winslow
European Patients' Academy on Therapeutic Innovation, Journalist, Blogger Birgit Bauer
Dancing for Disability - The People's Strictly (video clip), MS Advocate Trishna Bharadia
Work as a clinical outcome for care?, The Work Foundation's Stephen Bevan
The role of patient advocacy, Jean Mossman
Stem cells transplant, Prof. Joachim Burman
Therapeutic Plasma Exchange, Prof. Mariusz Stasiolek
Virtual Reality for MS, Physiotherapist Pablo Bezalel
EMSP is pleased to announce the launch of a Call to Action around our European Employment Pact for people with multiple sclerosis.
The event will take place on 26 May in the European Parliament in Brussels and will be chaired by MEP Adam Kosa.
We are calling on all stakeholders, from national MS societies to EU decision-makers, to get behind the Pact and help improve the situation of people with MS and other neurodegenerative diseases in the job market.
EMSP is kindly inviting people living with multiple sclerosis (MS) across Europe to complete our newly launched Pan-European Patients Survey (PEP).
All those interested can find the survey here.
It is accessible in 28 European languages and takes only 10 minutes to complete.
The Pan-European Survey is the only such initiative that focuses primarily on the specific situation and needs of people with MS in terms of employment, care, treatment, support and living environment.
As our MS advocate Shana Pezaro mentions in the enclosed video message, "we need to hear the voice of people with MS across Europe so we can push for better solutions and policies which will help improve their lives."
Find the related Press Release here.
Find the presentation leaflet here.
We are still open to receive applications from young people with MS living in Belgium, the Czech Republic, France, Ireland and the UK. Other positions in other European countries may also become available in the near future. Find the role descriptions here.
As Project Coordinator and MS advocate Emma Rogan says, "people with MS are not asking for charity, but for opportunities". EMSP and project partners are now offering this opportunity!
EMSP's second newsletter in 2015 focuses on our sustained advocacy work aimed at boosting employment for people with MS.
The main points from this issue of the Web Alert:
- Launch of our European Employment Pact
- Believe and Achieve builds momentum
- Launch of Under Pressure documentary video
EMSP was represented at the European Day of Persons with Disability - a European Disability Forum (EDF) event hosted by the European Commission on 2-3 December, in Brussels - by our Project Coordinator and MS advocate Emma Rogan (photo).
In a very personal speech she delivered on 3 December, Emma shared her own experience of living with multiple sclerosis while stressing the importance of access to employment:
"Paid work opens up opportunities and provides sense of purpose, security and dignity."