The European Multiple Sclerosis Platform (EMSP) was a leading participant in a two-day conference focusing on brain-related issues - BRAI.NS 2014 - organised on 14-15 February, in Barcelona, Spain.
EMSP's President John Golding and Deputy CEO Christoph Thalheim gave keynote speeches in front of a specialised attendance of more than 500 stakeholders from the fields of neurology, brain disorders and research - university professors, neurologists, EU decision-makers and industry partners among them.
John Golding and his wife Elisabeth delivered an inspiring presentation from a patient/ carer perspective, telling the story of how they coped and are coping with multiple sclerosis.
A detailed report on BRAI.NS 2014 is available on EurActiv.
“25 years, and more to come, as the voice of people with MS in Europe”
The European Multiple Sclerosis Platform (EMSP) would like to invite you to:
EMSP Spring Conference 2014
Dublin 8-9 May
Programme and registration here.
This two-day conference marks the 25th anniversary of EMSP. To celebrate the progress on the European stage and also plan for the road ahead, we will be bringing together people with multiple sclerosis (MS), carers, experts and professionals from across Europe to offer you a dynamic mix of presentations, interactive sessions and debates, as well as a special gala dinner and entertainment.
“Care where it counts - in the journey with MS”
EMSP's newsletter for January 2014 underlines the recent achievements in raising awareness of the challenges of MS across Europe and looks at important events scheduled in the new year.
The main topics from this issue of the Web Alert:
- Roundtable with EMSP's members on patient experience
- Launch of EUReMS studies
- Expanding MS Nurse PROfessional
- The Under Pressure project, promoted at national level
The bid for a Written Declaration for neurodegenerative diseases (NDDs) in the workplace managed to gather 161 signatures from Members of the European Parliament (MEP), which was unfortunately not enough for the document to become an official position of the European Parliament in the context of a very crowded public agenda leading up to the European elections in May.
However, EMSP believes that this was a useful opportunity to highlight the challenges for people with NDDs and that it should represent the starting point of a sustained campaign to ensure proper employment for those living with multiple sclerosis, Alzheimer’s, Parkinson’s or other NDDs.
At a packed roundtable discussion in Brussels, on the 9th of December, representatives of MS societies and organisations from more than 20 countries reinforced the need for up-to-date information on the experiences of people affected by MS in Europe - which could be met through a Pan-European MS Patient Experience Survey.
The European Multiple Sclerosis Platform was represented at the 29th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS), held in Copenhagen, Denmark, between 2-5 October.
EMSP's focus for this edition of ECTRIMS was conveying the importance of its flaghsip projects: centralising and sharing MS-data (EUReMS – European Register for Multiple Sclerosis), encouraging improved access to treatment, care and employment for people with multiple sclerosis (Under Pressure), and emphasising on the necessity of having nurses specialised in treating MS patients (MS Nurse Pro).
It was also an excellent opportunity for EMSP to promote and disseminate its new presentation leaflet, “Raising the voice of people with MS in Europe”.