EMSP's newsletter for November 2013 covers important recent developments for the European MS community, while also introducing a new feature - "MS in the media".
The main topics from this issue of the Web Alert:
- Save the date for EMSP's 2014 Spring Conference
- EMSP's Membership Satisfaction Survey
- New Under Pressure video
- The story of a journalist living with MS
The European Multiple Sclerosis Platform (EMSP) is raising signatures for a Written Declaration in support of people with neurodegenerative diseases.
Find the Written Declaration here.
The trigger for this initiative was the panel discussion “Neurodegenerative Diseases in the Workplace”, co-organised in July by EMSP, Alzheimer Europe and the European Parkinson's Disease Association.
Find the event report here.
“25 years, and more to come, as the voice of people with MS in Europe”
The European Multiple Sclerosis Platform (EMSP) would like to invite you to:
EMSP Spring Conference 2014
Dublin 8-9 May
This two-day conference marks the 25th anniversary of EMSP. To celebrate the progress on the European stage and also plan for the road ahead, we will be bringing together people with multiple sclerosis (MS), carers, experts and professionals from across Europe to offer you a dynamic mix of presentations, interactive sessions and debates, as well as a special gala dinner and entertainment.
“Care where it counts - in the journey with MS”
The European Multiple Sclerosis Platform was represented at the 29th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS), held in Copenhagen, Denmark, between 2-5 October.
EMSP's focus for this edition of ECTRIMS was conveying the importance of its flaghsip projects: centralising and sharing MS-data (EUReMS – European Register for Multiple Sclerosis), encouraging improved access to treatment, care and employment for people with multiple sclerosis (Under Pressure), and emphasising on the necessity of having nurses specialised in treating MS patients (MS Nurse Pro).
It was also an excellent opportunity for EMSP to promote and disseminate its new presentation leaflet, “Raising the voice of people with MS in Europe”.
The European Multiple Sclerosis Platform (EMSP) was successfully represented in the 2013 edition of the very popular Brussels Marathon by a young and enthusiastic team. Among those "running for MS" on 6 October were Emma Rogan, EMSP's Youth Representative and MS advocate, Andreea Antonovici, EMSP's PA and Event Coordinator, and Claudiu Berbece, EMSP's Communications Officer.
Each "runner for MS" wore a T-shirt with the EMSP logo, in support of our mission: bringing a better quality of life for the 600,000 people living with multiple sclerosis in Europe.
EMSP would once again like to thank all the members of the "Run for MS" team and invite them to participate on our behalf for future similar events.
The European Federation of Neurological Associations (EFNA) held a Pledge signing event in the European Parliament, on 7-8 May, to mark the European Month of the Brain. With this occasion, 19 Members of the European Parliament pledged to join the cause of supporting essential investment in neuroscience research and protecting the interests of neurology patients.
The Pledge is also available to sign online.