The MS Barometer is a comparative survey collecting key information on Multiple Sclerosis (MS) in over 30 countries in Europe. It serves as a benchmarking tool to provide an accurate picture of MS management across Europe.
The Barometer results will serve to improve the health and social care systems by outlining areas for improvement and encourage decision-makers to take actions to improve the quality of life of people affected by multiple sclerosis.
First launched in 2008, the MS Barometer is a collection of MS data gathered by national MS societies and centralised by EMSP – finally reached its 6th edition in 2020-2021.
The 2020 MS Barometer benefited from the active participation and involvement of 35 of our member societies. The new MS Barometer assesses not only health care but also social care systems for both people with MS and their carers, and is an improved questionnaire inspired by the World Health Organisation vision:
“All people have equal access to quality health services; services meet life course needs, services are coordinated across the continuum of care, carers operate in a supportive environment.”
The MS Barometer assesses 5 indicators of health and social care including:
1. Health care service delivery – Including the number of MS health facilities and the number of MS-related health workers
2. Health information – Including MS epidemiology, MS data collection, and MS research
3. Access to treatments – Including access to disease-modifying drugs (DMDs) and symptomatic medical treatments and therapies
4. Governance, leadership, and health financing – Including existing MS-relevant policies, patient engagement, and health financing
5. Participation in society – Including education/employment opportunities for people with MS and social support available to people with MS and their carers
The results outline areas where policy decision-makers can improve:
- Personalised care
- Social and finacial protection
- Quality of life for people affected by MS
The MS Barometer 2020 key highlights were launched on 3 December 2020 – the International Day of Persons with Disabilities – and the full report with the country factsheets will be launched through an overarching campaign during Brain Awareness Week 2021 (15-21 March 2021).
Please stay tuned and follow us on social media for more information.
Visit the MS Barometer website here: http://msbarometer.eu/
(Please note that the official MS Barometer platform with interactive features will be available later in 2021.)
The MS Barometer 2020 was supported by: Almirall, Biogen, Bristol Myers Squibb, MedDay, Merck, Mylan, Novartis, Roche, Sanofi-Genzyme
Find the 2020 MS Barometer here.
Find the 2017 MS Barometer here.
Find the 2015 MS Barometer here.
Find the 2013 MS Barometer here.
Find the 2011 MS Barometer here.
Find the 2009 MS Barometer here.