The MS Barometer is a multi-country survey that serves as a benchmarking tool to provide accurate MS management information to improve health and social care systems across European countries and thus, lead to an improved quality of life of people affected by multiple sclerosis.
First launched in 2008, the MS Barometer raises awareness on the huge inequalities that exist in MS management in different countries.
The MS Barometer – a collection of MS data gathered by national MS societies and centralised by EMSP – will reach its 6th edition in 2020.
The 2020 MS Barometer benefited from the active participation and involvement of 32 of our member societies.
The new MS Barometer assesses not only health care but also social care systems for both people with MS and their carers, with an improved questionnaire inspired by a World Health Organisation vision:
“All people have equal access to quality health services; services meet life course needs, services are coordinated across the continuum of care, carers operate in a supportive environment.”
The MS Barometer assesses 5 indicators of health and social care including:
1. Health care service delivery – Including the number of MS health facilities and the number of MS related health workers
2. Health information – Including MS epidemiology, MS data collection and MS research
3. Access to treatments – Including access to disease modifying drugs (DMDs) and symptomatic medical treatments and therapies
4. Governance, leadership and health financing – Including existing MS-relevant policies, patient engagement, and health financing
5. Participation in society – Including education/employment opportunities for people with MS and social support available to people with MS and their carers
The results outline areas where policy decision-makers can improve:
- Personalised care
- Social and finacial protection
- Quality of life for people affected by MS
Find the 2017 MS Barometer here.
Find the 2015 MS Barometer here.
Find the 2013 MS Barometer here.
Find the 2011 MS Barometer here.
Find the 2009 MS Barometer here.