The European Register for Multiple Sclerosis (EUReMS) proved that cross-border multiple sclerosis (MS) data collection is possible and can to lead to better outcomes for those living with MS in Europe.
EUReMS addressed the lack of data at EU and national level on treatment and care for people with multiple sclerosis (MS).
Find a presentation leaflet here.
The project ran between 2011 and 2014 under the coordination of a consortium of academic institutions and NGOs.
Find the project partners on the dedicated website.
The data collected from the participating MS registries (listed above) fueled four studies.
EUReMS’ objective is to ultimately support the provision of a European wide collection of data for research and practice. The ideal scenario would be for all European countries to have their own centralised MS data system.
Find the project report here.
“Comparing data from different countries will be of great benefit to MS patients. EUReMS goes beyond the national borders. It is a comprehensive analysis.”
Karoline Buckow (co-lead, Study 1), IT Professional, Department of Information Technology Medical University Centre, Gottingen, Germany
Going forward, EMSP will build on the knowledge, experience and momentum achieved between 2011 and 2014. We want to encourage a growing number of MS registers across Europe to adopt EUReMS protocols of data pooling and analysis.eurems.eu