The European Register for Multiple Sclerosis (EUReMS) proved that cross-border MS data collection is possible and has the potential to lead to better outcomes for those living with multiple sclerosis in Europe.
Run between 2011 and 2014 by a consortium of academic institutions and NGOs, the first phase of EUReMS addresses the lack of data at EU and national level on treatment and care for people with multiple sclerosis (MS).
Find the project partners list on the dedicated website.
Find a presentation leaflet here.
The data collected from the participating MS registries (listed below) fueled four studies on areas relevant for both scientists and people living with MS.
EUReMS’ ultimate aim is to provide a comprehensive resource of collected data for research and practice for all European countries, including those that do not currently have their own.
Find the project report here.
“Comparing data from different countries will be of great benefit to MS patients. EUReMS goes beyond the national borders. It is a comprehensive analysis.”
Karoline Buckow (co-lead, Study 1), IT Professional, Department of Information Technology Medical University Centre, Gottingen, Germany
In the second phase of the project, EMSP will build on the knowledge, experience and momentum achieved between 2011 and 2014 to encourage a growing number of MS registers across Europe to adopt EUReMS protocols of data pooling and analysis.eurems.eu