EU Code of Good Practice
The updated version of EMSP's Code of Good Practice, Defeating MS Together, was launched during the recent EMSP Spring Conference, organised in Dublin, Ireland, on 8-9 May.
The document was produced by Dr Alexis Willett, the Founding Director of Punch Consulting.
The European Code of Good Practice on the rights and quality of life for people with multiple sclerosis was developed and launched around 10 years ago in order to continue the political momentum created by the European Parliament Report and Resolution on MS.
Even today, the Code of Good Practice helps to raise awareness of several consensus documents and core reference papers on MS in a comprehensive and accessible way.
In publishing this second edition of Recommendations for Rehabilitation of MS, the European Multiple Sclerosis Platform (EMSP) demonstrates its commitment to ensuring that all MS stakeholders – including patients, health professionals and policy makers – have access to cutting-edge information.
This update was prompted by the achievement of critical advances in three aspects of rehabilitation:
- Introduction of the International Classification of Functioning (ICF) has expanded the perception of rehabilitation, taking it from the notion of specific treatment of a single symptom to the concept of treating the full range of disabilities and handicaps resulting from the original symptom.
- New insights into the mechanisms of rehabilitation, especially in the area of neuroplasticity, recognise the brain's ability to actively change its organisation when functions are damaged or lost due to deterioration of neuronal networks.
- Increased recognition of the importance of goal setting and identifying outcome measures for rehabilitation underpin a shift toward rehabilitation programmes designed to help patients address quality of life issues. Considerable scientific data now support the idea that people with MS (PwMS) should take part in making decisions to determine what treatment is best for them in a given situation.
These documents are endorsed by the European Commission, the European Parliament and by a number of national Health Ministers.
The Code Of Good Practice in MS is now available in various languages.