News from Europe
The "Cross-border healthcare" Directive, entered into force on 25 October 2013, gives European citizens the right to receive medical treatment across the EU, and to be reimbursed for it.
The new Directive introduces three major changes focusing on patients' rights, according to the European Commission:
Firstly, citizens have the right to choose and be reimbursed for treatment, either public health care or private health care, anywhere in the EU.
Secondly, prior authorisations for cross-border healthcare will become the exception rather than the rule.
Finally, citizens have the right to make informed decisions about treatment options. They entitled to receive any relevant information from national contact points, established under the new Directive, and information from health care and treatment providers directly.
A number of 26 patients’ organisations from across Europe, including the European Multiple Sclerosis Platform (EMSP), came together to discuss pressing matters related to the integration of people with multiple sclerosis in the workplace.
The patient advocaty summit was organised by pharmaceutical company Biogen Idec, at the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS), held between 2 and 5 of October in Copenhagen, Denmark.
The meeting was opened by Shana Pezaro, MS advocate representing EMSP. She reminded the audience of the importance and socio-economic benefits of having a fully participative life for people affected by disabilities. She also talked about the challenges faced by employers in recruiting or keeping employess with neurological conditions such as multiple sclerosis.
The European Multiple Sclerosis Platform (EMSP) is raising signatures for a Written Declaration in support of people with neurodegenerative diseases.
Find the Written Declaration here.
The trigger for this initiative was the panel discussion “Neurodegenerative Diseases in the Workplace”, co-organised in July by EMSP, Alzheimer Europe and the European Parkinson's Disease Association.
Find the event report here.
MS Nurse PROfessional, EMSP's ground-breaking online educational tool, organised the first scientific sessions for MS nurses at the 29th annual congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS), held between 2-5 October in Copenhagen, Denmark.
This programme is a first an important step towards consolidating standards of MS nursing care across Europe and is the result of collaboration between leading patient groups and professional organisations.
Find out more from the attached Press Release.
The European Multiple Sclerosis Platform was represented at the 29th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS), held in Copenhagen, Denmark, between 2-5 October.
EMSP's focus for this edition of ECTRIMS was conveying the importance of its flaghsip projects: centralising and sharing MS-data (EUReMS – European Register for Multiple Sclerosis), encouraging improved access to treatment, care and employment for people with multiple sclerosis (Under Pressure), and emphasising on the necessity of having nurses specialised in treating MS patients (MS Nurse Pro).
It was also an excellent opportunity for EMSP to promote and disseminate its new presentation leaflet, “Raising the voice of people with MS in Europe”.