The voice of people

with MS in Europe

News from Europe

EMSP Annual Conference: Presentations available

 

 

 

EMSP’s Annual Conference in Warsaw, Poland hosted, on 15 and 16 May, nearly 150 stakeholders interested in finding the best solutions for ‘Access to employment and participation’ - the main theme of the event. 

 

Conference presentations from both days are available in the full article (to access click on the title). 

 

Day 2:

 

European Employment Pact, EMSP CEO Maggie Alexander 

 

Launch of MS Nurse Pro in Poland, EMSP President Anne Winslow 

 

European Patients' Academy on Therapeutic Innovation, Journalist, Blogger Birgit Bauer

 

Dancing for Disability - The People's Strictly (video clip), MS Advocate Trishna Bharadia  

 

Work as a clinical outcome for care?, The Work Foundation's Stephen Bevan

 

The role of patient advocacy, Jean Mossman 

 

Stem cells transplant, Prof. Joachim Burman 

 

Therapeutic Plasma Exchange, Prof. Mariusz Stasiolek 

 

Virtual Reality for MS, Physiotherapist Pablo Bezalel

EFNA launches Interest Group on Brain, Mind and Pain

 

 

EMSP's partners at the European Federation of Neurological Associations (EFNA) have launched the Parliamentary Interest Group on Brain, Mind and Pain. 

 

The event took place on 24 February, in Brussels, in the presence of European decision-makers as well as health specialists, representatives of patient organisations and pharmaceutical industry. 

 

Officially launching the group, Member of the European Parliament Marian Harkin stressed the impact and prevalence of neurological and chronic pain disorders.

Patients' voice at EBC brain research seminar

 

 

EMSP's partners from the European Brain Council (EBC) have joined the efforts to boost research in the field of brain diseases by organising a multi-stakeholder seminar, “Criteria for success: The future of collaborative brain research”.

 

The event took place on 3 March, in Brussels, and was attended by representatives of patient organisations and academia, as well as pharmaceutical companies and European Union institutions. 

 

Find the event report here.

 

As the title suggests, EBC’s seminar proposed a debate on the different ways of achieving efficient collaboration between all the relevant parties involved in brain research. A particular highlight was the patients' voice, with representatives of the Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN) and Rare Diseases Europe (Eurodis) among the keynote speakers.   

 

This was the first major event included in EBC’s Year of the Brain 2015 campaign. 

MS Nurse Pro launched in Germany

 

 

EMSP’s MS Nurse Professional project - an accredited online training tool aiming to consolidate standards of MS nursing care across Europe - was officially launched in Germany. The event took place on 30 January 2015, in Hannover, and was organised by the German MS Society (DMSG).

 

German is the fifth language version made available by MS Nurse Pro through its training modules, following the English (for UK and Ireland), Spanish, Czech and Italian launches.

  

By September 2014, a number of 1,500 MS nurses from across Europe had already enrolled for MS Nurse Pro.

 

And the programme is constantly improving its reach, with further national launches scheduled in 2015 - in Belgium, France, Switzerland, Austria, Poland and the Netherlands.