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News from Europe

EFNA launches Interest Group on Brain, Mind and Pain

 

 

EMSP's partners at the European Federation of Neurological Associations (EFNA) have launched the Parliamentary Interest Group on Brain, Mind and Pain. 

 

The event took place on 24 February, in Brussels, in the presence of European decision-makers as well as health specialists, representatives of patient organisations and pharmaceutical industry. 

 

Officially launching the group, Member of the European Parliament Marian Harkin stressed the impact and prevalence of neurological and chronic pain disorders.

Patients' voice at EBC brain research seminar

 

 

EMSP's partners from the European Brain Council (EBC) have joined the efforts to boost research in the field of brain diseases by organising a multi-stakeholder seminar, “Criteria for success: The future of collaborative brain research”.

 

The event took place on 3 March, in Brussels, and was attended by representatives of patient organisations and academia, as well as pharmaceutical companies and European Union institutions. 

 

Find the event report here.

 

As the title suggests, EBC’s seminar proposed a debate on the different ways of achieving efficient collaboration between all the relevant parties involved in brain research. A particular highlight was the patients' voice, with representatives of the Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN) and Rare Diseases Europe (Eurodis) among the keynote speakers.   

 

This was the first major event included in EBC’s Year of the Brain 2015 campaign. 

MS Nurse Pro launched in Germany

 

 

EMSP’s MS Nurse Professional project - an accredited online training tool aiming to consolidate standards of MS nursing care across Europe - was officially launched in Germany. The event took place on 30 January 2015, in Hannover, and was organised by the German MS Society (DMSG).

 

German is the fifth language version made available by MS Nurse Pro through its training modules, following the English (for UK and Ireland), Spanish, Czech and Italian launches.

  

By September 2014, a number of 1,500 MS nurses from across Europe had already enrolled for MS Nurse Pro.

 

And the programme is constantly improving its reach, with further national launches scheduled in 2015 - in Belgium, France, Switzerland, Austria, Poland and the Netherlands.   

EDF event: "Persons with disabilities at work - the invisible workers?"

 

 

EMSP's partners from the European Disability Forum (EDF) followed-up on their European Day of Persons with Disability event and, on 10 December, organised a discussion with EU policy-makers on the huge differences in rates of employment for people with or without disabilities living the European Union

 

Titled 'Persons with disabilities at work: the invisible workers?’, the meeting took place at the European Parliament and was chaired by MEP Jutta Steinruck, S&D Coordinator of the Employment Committee.

 

Find details about the meeting here

 

According to the latest EU data, there is still a 26% difference in rates of employment for persons with and without disabilities across the EU. This is 30 points lower than the Europe 2020 target of 75% employment for persons with disabilities.