News from Europe
The European Patients’ Forum (EPF) campaign built around the message “Patients + Participation = Our Vote for a Healthier Europe" reached an important landmark by organising a cocktail and special exhibition in the European Parliament, between 17 and 20 March. EPF and its partners and supporters encouraged the Members of the European Parliament (MEPs) to sign a Manifesto and commit to including a patient perspective in their work for the new parliamentary session.
The National MS Center in Melsbroek, Belgium will participate in EMSP’s Spring Conference in Dublin, where Medical Director Tom Meurrens will be involved in a ‘wellbeing marketplace’ and in a workshop session on exchange of good practice.
On 17 March, EMSP CEO Maggie Alexander met with Tom Meurrens and Managing Director Marc Jans during a visit to the Melsbroek MS Center and also had very useful discussions on the importance of a multidisciplinary approach to rehabilitation as well as on possible future collaboration around EMSP initiatives such as the new Believe and Achieve project or the Pan-European MS Patient Experience survey.
EMSP's leading figures joined by representatives of our partners and sponsors gathered together on 11 March, at the Dominican Hotel in Brussels, for the annual Networking Dinner.
2014 is a very special year for EMSP, marking our 25th anniversary. This provides the occasion to look back on some of the highlights of EMSP's organisational history. Under the motto "25 years as the voice of people with multiple sclerosis in Europe", President John Golding's (pictured below) introductory speech briefly underlined EMSP's main achievements throughout the years.
By bringing together various sections of our society - namely, people with Parkinson’s and their families, healthcare professionals and patient organisations, European policymakers, the treatment industry, the general public, and the media – the event aims to raise the awareness of Parkinson’s disease across Europe and highlight its effects.
Report launch on access to treatment: ESMP asking for increased affordabitily and accessibility of MS medicines
Austrian Member of the European Parliament Angelika Werthmann organised a debate on inequalities in access to treatment in Europe, on 20 February, to coincide with the launch of a report by Charles River Associates (CRA) entitled “Access to medicines for multiple sclerosis: Challenges and opportunities”. The 55-page report provided the stimulus for a lively debate between representatives of patient organisations, healthcare professionals, EU institutions and industry.
EMSP was represented by Deputy CEO Christoph Thalheim (pictured above, next to MEP Angelika Werthmann), who expressed his hope “that today’s discussions will drive forward concrete actions that will increase the affordability of and access to essential medicines for MS patients across all Member States of the EU”.
- EMSP at BRAI.NS 2014: A patient/ carer perspective
- European Society of Radiology launches EuroSafe Imaging Campaign
- Save the date: RIMS Annual Conference, 6-7 June 2014
- The Written Declaration bid for neurodegenerative diseases: a useful experience
- Patient experience is a top priority for MS societies across Europe