News from Europe
EMSP's partners at Rehabilitation in MS (RIMS) have opened the registrations for their 20th Annual Conference, to be held on 9-11 April, in Milan, Italy.
RIMS welcomes MS healthcare professionals, patient organisations and researchers.
For more information on "early bird" registrations, please access the relevant section on RIMS' website: http://www.rims2015-milan.com/.
EMSP’s MS Nurse Professional project - an accredited online training tool aiming to consolidate standards of MS nursing care across Europe - was officially launched in Germany. The event took place on 30 January 2015, in Hannover, and was organised by the German MS Society (DMSG).
German is the fifth language version made available by MS Nurse Pro through its training modules, following the English (for UK and Ireland), Spanish, Czech and Italian launches.
By September 2014, a number of 1,500 MS nurses from across Europe had already enrolled for MS Nurse Pro.
And the programme is constantly improving its reach, with further national launches scheduled in 2015 - in Belgium, France, Switzerland, Austria, Poland and the Netherlands.
EMSP's partners from the European Disability Forum (EDF) followed-up on their European Day of Persons with Disability event and, on 10 December, organised a discussion with EU policy-makers on the huge differences in rates of employment for people with or without disabilities living the European Union.
Titled 'Persons with disabilities at work: the invisible workers?’, the meeting took place at the European Parliament and was chaired by MEP Jutta Steinruck, S&D Coordinator of the Employment Committee.
Find details about the meeting here.
According to the latest EU data, there is still a 26% difference in rates of employment for persons with and without disabilities across the EU. This is 30 points lower than the Europe 2020 target of 75% employment for persons with disabilities.
EMSP's partner organisation the European Federation of Neurological Associations (EFNA) invites representatives from patient associations to participate in the upcoming workshop on Pharmaceutical Pricing, Access and Reimbursement at the London School of Economics.
Taking place from February 23-24 2015, this important initiative is aimed at equipping participants with the knowledge and skills they need to be actively involved in influencing regulatory decision-making in relation to medical technologies/pharmaceuticals.
By attending this course, participants will obtain insights on: (a) how pharmaceuticals fit within the overall health care system; (b) how different countries in Europe and beyond pay for pharmaceuticals; (c) what are the most salient regulations addressing coverage/access and how these affect patient access; (d) how stakeholders - including patients - participate in the decision-making process.
EMSP was represented at the European Day of Persons with Disability - a European Disability Forum (EDF) event hosted by the European Commission on 2-3 December, in Brussels - by our Project Coordinator and MS advocate Emma Rogan (photo).
In a very personal speech she delivered on 3 December, Emma shared her own experience of living with multiple sclerosis while stressing the importance of access to employment:
"Paid work opens up opportunities and provides sense of purpose, security and dignity."
- ECTRIMS continues MS nurse fellowship programme
- EMSP at EFPIA’s Collaboration Summit: Advocating the importance of patient registries
- EFNA workshop: Advocate for Brain, Mind and Pain
- Believe and Achieve: Paid internships for young people with MS across Europe
- Paving the Path to Participation: Moving closer to an Employment Charter