News from Europe
EMSP’s Deputy Chief Executive Christoph Thalheim attended the Collaboration Summit organised by the European Federation of Pharmaceutical Industries and Associations (EFPIA), in Brussels, on 16-17 October.
Speaking in front of around 150 stakeholders from European institutions, patient organisations and businesses, Christoph Thalheim said that EMSP’s European Register for Multiple Sclerosis (EUReMS) can be employed as a solid pattern for building more patient registries across Europe:
"A European initiative is needed for the establishment of patient registries. EUReMS can be used as an example of good practice in this sense."
Right: Maggie Alexander (EMSP Chief Executive), attending an EFNA event in the European Parliament, in 2013
On 24-25 September, the European Federation of Neurological Associations (EFNA) held its Advocate for Brain, Mind and Pain workshop to allow for representatives of national neurology and pain patient organisations from across Europe to have their say on the issues that need to be on the European health agenda.
Find a full event report here.
This was a good opportunity to identify potential case-studies, speakers and content for an MEP Interest Group on Brain, Mind and Pain to be formed by EFNA together with Pain Alliance Europe in 2015.
We are now open to receive applications from young people with MS living in Belgium, the Czech Republic, Spain, France, Greece, Italy, UK and Portugal. Find the registration form and role descriptions on the dedicated page.
EMSP organised an all-day workshop on employment for people with disabilities, on 29 July, in Brussels, as part of its new Paving the Path to Participation (PPP) project, already acknowledged through a grant awarded by the European Commission’s DG Justice Progress programme.
The event gathered around 30 stakeholders from MS societies, the broader NGO sector, the industry and a representative of DG Justice, Ms Hana Velecka.
The European Multiple Sclerosis Platform (EMSP) took part in the Joint Congress of European Neurology 2014 organised between 31 May and 3 June, in Istanbul, by the European Federation of Neurological Societies (EFNS) and the European Neurological Society (ENS).
EMSP was one of ten member organisations of the European Federation of Neurological Associations (EFNA) to participate in a special Patient Corner - an opportunity to raise awareness of individual disease areas. EMSP promoted the newly revised Code of Good Practice in MS, Defeating MS Together, as well as several other deliverables, most of them presented at the recent Anniversary Spring Conference.
- MS Barometer 2013 launched on World MS Day
- EMSP wins EU grant to bolster employment for people with MS
- Landmark launches, top level speeches and key elections at EMSP's 25th Anniversary Spring Conference and AGM
- EPF campaign for EU Elections receives support in the European Parliament
- Melsbroek MS Centre to lend its expertise to the EMSP Spring Conference