News from Europe
EMSP's partners from the European Disability Forum (EDF) followed-up on their European Day of Persons with Disability event and, on 10 December, organised a discussion with EU policy-makers on the huge differences in rates of employment for people with or without disabilities living the European Union.
Titled 'Persons with disabilities at work: the invisible workers?’, the meeting took place at the European Parliament and was chaired by MEP Jutta Steinruck, S&D Coordinator of the Employment Committee.
Find details about the meeting here.
According to the latest EU data, there is still a 26% difference in rates of employment for persons with and without disabilities across the EU. This is 30 points lower than the Europe 2020 target of 75% employment for persons with disabilities.
EMSP's partner organisation the European Federation of Neurological Associations (EFNA) invites representatives from patient associations to participate in the upcoming workshop on Pharmaceutical Pricing, Access and Reimbursement at the London School of Economics.
Taking place from February 23-24 2015, this important initiative is aimed at equipping participants with the knowledge and skills they need to be actively involved in influencing regulatory decision-making in relation to medical technologies/pharmaceuticals.
By attending this course, participants will obtain insights on: (a) how pharmaceuticals fit within the overall health care system; (b) how different countries in Europe and beyond pay for pharmaceuticals; (c) what are the most salient regulations addressing coverage/access and how these affect patient access; (d) how stakeholders - including patients - participate in the decision-making process.
EMSP was represented at the European Day of Persons with Disability - a European Disability Forum (EDF) event hosted by the European Commission on 2-3 December, in Brussels - by our Project Coordinator and MS advocate Emma Rogan (photo).
In a very personal speech she delivered on 3 December, Emma shared her own experience of living with multiple sclerosis while stressing the importance of access to employment:
"Paid work opens up opportunities and provides sense of purpose, security and dignity."
The European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) is entering the second year of its multiple sclerosis nurse training fellowship programme for qualified/licensed European nurses, launched in early 2014.
This initiative provides the opportunity for MS nurses to obtain additional expertise through practical nursing experience and training in a mentored MS environment in Europe.
EMSP’s Deputy Chief Executive Christoph Thalheim attended the Collaboration Summit organised by the European Federation of Pharmaceutical Industries and Associations (EFPIA), in Brussels, on 16-17 October.
Speaking in front of around 150 stakeholders from European institutions, patient organisations and businesses, Christoph Thalheim said that EMSP’s European Register for Multiple Sclerosis (EUReMS) can be employed as a solid pattern for building more patient registries across Europe:
"A European initiative is needed for the establishment of patient registries. EUReMS can be used as an example of good practice in this sense."
- EFNA workshop: Advocate for Brain, Mind and Pain
- Believe and Achieve: Thirteen internships for young people with MS across Europe
- Paving the Path to Participation: Moving closer to an Employment Charter
- EMSP represented in Patient Corner at the Joint Congress of European Neurology
- MS Barometer 2013 launched on World MS Day