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News from Europe

EMSP at EFPIA’s Collaboration Summit: Advocating the importance of patient registries

 

 

EMSP’s Deputy Chief Executive Christoph Thalheim attended the Collaboration Summit organised by the European Federation of Pharmaceutical Industries and Associations (EFPIA), in Brussels, on 16-17 October.

 

Speaking in front of around 150 stakeholders from European institutions, patient organisations and businesses, Christoph Thalheim said that EMSP’s European Register for Multiple Sclerosis (EUReMS) can be employed as a solid pattern for building more patient registries across Europe:

 

"A European initiative is needed for the establishment of patient registries. EUReMS can be used as an example of good practice in this sense." 

EFNA workshop: Advocate for Brain, Mind and Pain

  Right: Maggie Alexander (EMSP Chief Executive), attending an EFNA event in the European Parliament, in 2013 

 


On 24-25 September, the European Federation of Neurological Associations (EFNA) held its Advocate for Brain, Mind and Pain workshop to allow for representatives of national neurology and pain patient organisations from across Europe to have their say on the issues that need to be on the European health agenda.

 

Find a full event report here.

 

This was a good opportunity to identify potential case-studies, speakers and content for an MEP Interest Group on Brain, Mind and Pain to be formed by EFNA together with Pain Alliance Europe in 2015.

Paving the Path to Participation: Moving closer to an Employment Charter

 

EMSP organised an all-day workshop on employment for people with disabilities, on 29 July, in Brussels, as part of its new Paving the Path to Participation (PPP) project, already acknowledged through a grant awarded by the European Commission’s DG Justice Progress programme.

 

The event gathered around 30 stakeholders from MS societies, the broader NGO sector, the industry and a representative of DG Justice, Ms Hana Velecka.

 

 

EMSP represented in Patient Corner at the Joint Congress of European Neurology

 

The European Multiple Sclerosis Platform (EMSP) took part in the Joint Congress of European Neurology 2014 organised between 31 May and 3 June, in Istanbul, by the European Federation of Neurological Societies (EFNS) and the European Neurological Society (ENS). 

 

EMSP was one of ten member organisations of the European Federation of Neurological Associations (EFNA) to participate in a special Patient Corner - an opportunity to raise awareness of individual disease areas. EMSP promoted the newly revised Code of Good Practice in MS, Defeating MS Together, as well as several other deliverables, most of them presented at the recent Anniversary Spring Conference.