EMSP Member News
On 22 March, the Secretary General of the German MS Society (DMSG) and former president of EMSP, Dorothea Pitschnau-Michel (pictured above, on the left), was awarded with the 1st class of the Order of Merit of the Federal Republic of Germany, in a ceremony organised in Hannover and presided over by the Regional President Hauke Jagau (also pictured above). The official praised in very high terms Mrs Pitschnau-Michel’s contribution to the wellbeing of people with multiple sclerosis in Germany during her ongoing 30-year career in this field.
On 14 March, Her Royal Highness the Princess of Asturias Letizia Ortiz received a delegation from the Spanish MS Society (EME) at the La Zarzuela Palace in Madrid.
During this official reception, the Princess of Asturias showed a great interest in the area of MS research. She expressed her support especially for research into progressive MS, which cannot be managed with any drugs at present.
On 12 March, the Belgian National Multiple Sclerosis League staged its annual Gala Concert, at the Palais de Beaux Arts in Bruxelles.
The event drew a crowd of around 1,000 people, who witnessed the Belgian bass-baryton Wilfried Van den Bran deliver a selection of songs created by American composer Cole Porter. Van den Bran was accompanied by the Brussels Philharmonic.
On 20 February, the Polish MS Society (PTSR) met with representatives of the Polish Ministry of Health in a bid to convince the health authorities to solve the problem of multiple sclerosis patients losing their entitlement to state-funded treatment with disease-modifying drugs (DMDs). The meeting produced a temporary solution involving the pharmaceutical industry, with PTSR vowing to keep this matter on the public agenda as “it concerns real people and their health, not so-called diseases qualifications”.
On 18 February, the Romanian MS Society (SSMR) joined, in Bucharest, by representatives of the Neurological Society of Romania (SNR) and of the Romanian Doctors College (CMR) organised a roundtable debate on accesibility of treatment for multiple sclerosis.
The state spends an average of 10,000 euros per year for every MS patient, which is 20 times the gross medium monthly wage in Romania. However, a top health professional present at the discussion admitted that the total costs of MS treatment are significantly higher, putting a tremendous financial burden on those affected and their families. In Western European countries, the same costs are belived to average up to 40,000 euros per year or even higher.
- 2013 EMSP Membership Satisfaction Survey: Positive feedback, increased support requested for national level initiatives
- Greek MS society event: "Improve the qualify of your life"
- National Multiple Sclerosis Seminar in Romania: Building the future for people with MS
- Parliamentary event in Poland: “The faces of MS”
- Lithuanian MS Union is one of the partners engaged in carrying an innovative and relevant project in Lithuania