EMSP Member News
by Jon Temme, MSIF Coordinating Consultant to the International Pediatric MS Study Group
Many new medications to treat multiple sclerosis (MS) are already or will soon be approved as new options in the treatment of multiple sclerosis in adults. However, MS can be observed as early as 2 years of age and becomes more frequent after the age of 10. Most of these children are now receiving medications approved for use in adults despite the fact that these medications have not been formally evaluated by clinical trials in children. Unfortunately, as in adults, close to 40% of children or adolescents have to stop treatment due to intolerance, toxicity or persisting relapses, supporting the need for new therapeutic options in children.
John Golding (left) and Lars Ole Hammersland, Chairman of the Board
of the Norwegian MS Society
Former EMSP President John Golding was awarded with the Norwegian MS Prize 2014 for his extensive activity in service of people with multiple sclerosis from Norway, Europe and the world.
John Golding received this honour during the biannual Convention at Gardermoen, Oslo, organised on 8 November by the Norwegian MS Society. Delegates from all over the country were present.
John Golding, 63, was diagnosed with multiple sclerosis in 1987. With the constant support of his wife Elisabeth, he managed to overcome the setbacks associated with this condition and become one of the most active and inspiring MS advocates. Find their detailed story in the May edition of EMSP's Web Alert.
EMSP's President, Anne Winslow, took part in an important debate held in the Polish Parliament on 30 September, with discussions focused on access to treatment and support, as well as on means to improve the quality of life for people living with MS in Poland.
The event, which was organised by the NeuroPositive Foundation, brought together members of Parliament, representatives of national Health and Social ministries, the Social Insurance authority, researchers and patient organisations.
Photo: EMSP's President, Anne Winslow (pictured on the right)
In this context, EMSP presented the 2013 edition of its MS Barometer to illustrate the current situation in Poland compared to other European countries and also to underline the pressing need for improvement in areas such as medication and rehabilitation services.
EMSP's Anniversary Spring Conference 2014 was a success and we have received many requests from our members and partners to provide easy access to the insightful presentations delivered on 8-9 May, in Dublin.
We therefore enclose the documents in this post and trust our constituency and stakeholders will put them to good use.
Please click on the headline of this article to access the presentations.
Please also find the Conference Report here.
The third edition of the Walk for MS event was organised on 24 May, in the Belgian town of Lier.
Boasting an impressive attendance of 1,000 people, Walk for MS brought together people with multiple sclerosis, carers, supporters of the cause and professionals from the MS field. There was singing, Zumba dancing and, of course, walking.
- Art and craft at the 2nd edition of the Polish MS Abilympics
- Former EMSP President receives high decoration from the German state
- Princess of Asturias meets Spanish MS Society in support of multiple sclerosis research
- The Belgian MS League organises Gala Concert
- Progress in access to vital MS treatment brokered by Polish MS Society