EMSP Member News
2013 EMSP Membership Satisfaction Survey: Positive feedback, increased support requested for national level initiatives
The EMSP Membership Satisfaction Survey 2013 collected data from 13 different member organisations regarding various parameters, such as their interaction with EMSP and their participation in EMSP’s projects and events.
The main purpose of this evaluation survey was to have feedback from our associations on their satisfaction level with EMSP’s work and initiatives and to take up any suggestions for future actions.
The Greek MS Society organised the annual meeting titled “BmyLife – Improve the quality of your life”, on 16 October, in the city of Thessaloniki.
EMSP was represented by President John Golding and Chief Executive Maggie Alexander.
The Romanian MS society (SSMR) organised, on 27-29 September, in the city of Cluj-Napoca, the National Multiple Sclerosis Seminar. This event was attended by 140 stakeholders: MS patients, their carers, neurologists, MS nurses, psychologists and local authorities.
The city’s mayor, ex-PM Emil Boc, expressed his admiration for the work of SSMR and pledged his support for the development of a centre where people living with MS would get information and counselling – the Smile Centre.
EMSP's President John Golding, pictured in the centre of the image
The Polish Multiple Sclerosis Society (PTSR) was represented at a debate held in the Polish Parliament on 24 September.
The main focus of the event were the social costs of MS, with a patients’ perspective approach.
The guest of honour was EMSP’s President John Golding. He gave a presentation about the situation of people with MS in Europe, opening the debate. He was followed by dr Gisela Kobelt’s analytical lecture on the social costs of MS.
Lithuanian MS Union is one of the partners engaged in carrying an innovative and relevant project in Lithuania
The Heppy project is funded by the European Commission in the framework of the Lifelong Learning programme, Leonardo da Vinci-Development of innovation. The project, promoted by Gradenigo Hospital (IT) co-ordinated by Pixel, has the aim to provide professional health carers with the necessary skills to develop an holistic approch with patients with chronic diseases.