The voice of people

with MS in Europe

EMSP Member News

Top 10 highlights from 2015 Annual Conference

 

 

EMSP’s 2015 Annual Conference enjoyed an audience of 150 stakeholders representing some of our key members and partners.

 

As a follow-up to the event we have made available a series of engaging presentations.

 

Now we would like to present a Conference Top 10

 

  • European Employment Pact for People with MS

EMSP’s Chief Executive Maggie Alexander outlined the main objectives of our recently launched Employment Pact for people with MS and other neurodegenerative diseases.

 

Find her presentation here.

Estonian MS Society marks 25 years with advocacy event

 

 

EMSP's members from the Estonian MS Society (ESMUL) have marked their 25th anniversary with a high-profile national conference attended by around 100 stakeholders.

 

The event took place on 20 March in the Estonian capital - Tallinn. 

 

The organisers and participants engaged in a series of constructive discussions on important topics for the national MS community, such as patient rights and the quality of care, alternative medicine and the benefits of physical exercise. 

 

A special part in the programme was the national launch of a documentary film on living with MS in Estonia - included in EMSP's Under Pressure project. 

"We need to hear your voice". Complete EMSP's Pan-European Patients Survey

 

 

 

EMSP is kindly inviting people living with multiple sclerosis (MS) across Europe to complete our newly launched Pan-European Patients Survey (PEP). 

 

All those interested can find the survey here.

 

It is accessible in 28 European languages and takes only 10 minutes to complete. 

 

The Pan-European Survey is the only such initiative that focuses primarily on the specific situation and needs of people with MS in terms of employment, care, treatment, support and living environment. 

 

As our MS advocate Shana Pezaro mentions in the enclosed video message, "we need to hear the voice of people with MS across Europe so we can push for better solutions and policies which will help improve their lives."

Workshop for Central and Eastern European MS Societies: Make your voice heard

 

The Hungarian MS Society organised a two-day workshop with the participation of the national MS societies of five Central and Eastern European countries – the Czech Republic, Austria, Poland, Hungary and Slovakia – in association with other international organisations and speakers. The event took place on 2-4 December, in Budapest, Hungary.

 

The main topic referred to the challenges MS organisations have to face in the Central and Eastern European region. The working title of the program was Make your Voice Heard – How to Communicate with Impact.

 

EMSP was represented at the Hungarian event by External Affairs Coordinator Yves Brand. He spoke about European initiatives helping the work of local MS organisations and about opportunities for cooperation.