EMSP Member News
EMSP's President, Anne Winslow, took part in an important debate held in the Polish Parliament on 30 September, with discussions focused on access to treatment and support, as well as on means to improve the quality of life for people living with MS in Poland.
The event, which was organised by the NeuroPositive Foundation, brought together members of Parliament, representatives of national Health and Social ministries, the Social Insurance authority, researchers and patient organisations.
Photo: EMSP's President, Anne Winslow (pictured on the right)
In this context, EMSP presented the 2013 edition of its MS Barometer to illustrate the current situation in Poland compared to other European countries and also to underline the pressing need for improvement in areas such as medication and rehabilitation services.
EMSP's Anniversary Spring Conference 2014 was a success and we have received many requests from our members and partners to provide easy access to the insightful presentations delivered on 8-9 May, in Dublin.
We therefore enclose the documents in this post and trust our constituency and stakeholders will put them to good use.
Please click on the headline of this article to access the presentations.
Please also find the Conference Report here.
The third edition of the Walk for MS event was organised on 24 May, in the Belgian town of Lier.
Boasting an impressive attendance of 1,000 people, Walk for MS brought together people with multiple sclerosis, carers, supporters of the cause and professionals from the MS field. There was singing, Zumba dancing and, of course, walking.
More than 100 people with multiple sclerosis (MS) from across Poland gathered, on 17 May, in the Mazovian Centre "Ekwos", to participate in the 2nd Polish MS Abilympics - a series of competitions with the disciplines ranging from decoupage to water colour painting.
The Abilympics’ special guest was Maggie Alexander, EMSP's Chief Executive, who addressed the participants in a welcome speech stressing the importance of the values conveyed by the event. In her presentation, Maggie Alexander brought EMSP's work closer to the Polish patients.
On 22 March, the Secretary General of the German MS Society (DMSG) and former president of EMSP, Dorothea Pitschnau-Michel (pictured above, on the left), was awarded with the 1st class of the Order of Merit of the Federal Republic of Germany, in a ceremony organised in Hannover and presided over by the Regional President Hauke Jagau (also pictured above). The official praised in very high terms Mrs Pitschnau-Michel’s contribution to the wellbeing of people with multiple sclerosis in Germany during her ongoing 30-year career in this field.
- Princess of Asturias meets Spanish MS Society in support of multiple sclerosis research
- The Belgian MS League organises Gala Concert
- Progress in access to vital MS treatment brokered by Polish MS Society
- Roundtable debate marks landmark campaign on access to treatment for MS patients in Romania
- 2013 EMSP Membership Satisfaction Survey: Positive feedback, increased support requested for national level initiatives