MS-ID project (2007-2009) demonstrated the feasibility of an European Register for Multiple Sclerosis. Therefore EMSP pursued its efforts in order to prepare the upcoming project so called “European Register for Multiple Sclerosis (EUReMS) – A tool to assess, compare and enhance the status of people with MS throughout the EU”.
Full title: European Register for Multiple Sclerosis – A tool to assess, compare and enhance the status of People with MS throughout the EU
Co-Funded by: EC Public Health Programme, Call 2010 – Priority area: 3.3..2 Promote health – Promote healthier ways of life and reduce major diseases and rare diseases – Subaction: Neurodegenerative diseases-launch first phase of multiple sclerosis
Duration: 36 months
Start date: 1 July 2011
Total budget: EUR 1.646.503,00
EC Contribution: EUR 987.198,00
The EUReMS has received co-funding from the European Union, in the framework of the Health Programme:
Objective of the project:
EUReMS aims at providing comparable and reliable data on MS and to assess the long term impact of MS disease modifying drugs on the development of the disease.
EUReMS is underpinned by the following principles:
• Build on already existing national or regional data collections;
• Involve and combine the expertise of clinicians, researchers and patients organizations;
• Address questions at international level;
• Include highest available expertise concerning its organisation and technical solutions;
• Ultimately contribute to improve access for people with MS across Europe to evidence-based health care services and offer a cutting-edge research tool to gain further insights into various aspects of MS.
• An IT infrastructure for the register;
• An IT platform for collaboration and dissemination of knowledge on MS;
• A critical mass of national and regional MS centers for collaborative and sustainable; European Research in the field of MS;
• Contributions to EU policies.
• Higher awareness of MS among both clinicians and general public in the European Union;
• Improved knowledge and management of MS;
• Sense of community for affected people and their families.
• Association of Multiple Sclerosis Societies of Croatia, AMSSC
• Deutsche Multiple Sklerose Gesellschaft Bundesverband e.V., DMSG
• Dept of Neurosciences, University of Sassari, NeuroSS
• University of Bergen, UiB
• Fundació Institut de Recerca Hospital Universitari Vall d'Hebron, FIRHUVH
• Polskie Towarzystwo Stwardnienia Rozsianego, PTSR
• Societatea de Scleroza Multipla din Romania, SSMR
• The Multiple Sclerosis Society of Great Britain and Northern Ireland, UK MS Society
• Universitaetsmedizin Goettingen - Georg-August - Universitaet Goettingen - Stiftung Oeffentlichen Rechts, UMG-GOE
• Karolinska Institute, KI
• Neurologisches Rehabilitationszentrum Quellenhof in Bad Wildbad GmbH, NRCQ
• European Federation of Neurological Associations
• Federacion Espanola para la Lucha contra la Esclerosis Multiple
• Savez Udruženja oboljelih od Multiple Skleroze Bosne i Hercegovine
• European Committee for Treatment and Research in Multiple Sclerosis
• European Patients' Forum
• European Brain Council
• European Federation of Neurological Societies