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MS Research Agenda

Moving towards a Patient Centred Approach

 8 – 9 June Radisson Carlton Hotel, Bratislava

DAY 1: Friday, 8 June, 08:30 – 17:00

Time

Programme and speakers
08:30 – 10:30 Educational workshop: CLINICAL TRIALS

Dr Marleen Verbeeck , European Centre for Clinical Research Training

10:30 – 11:00 Coffee and networking break
11:00 – 11:10 Welcome and introduction

EMSP President

11:10 – 11:30 Key note address

Minister of Health

11:30 – 12:15 MS research agenda

Prof Alan Thompson, Consultant Neurologist, National Hospital for Neurology and Neurosurgery (NHNN), Queen Square

Followed by a Q&A session

12:15 – 12:45 The role of patients in shaping up the research agenda

Harriet Doig, Information Advocacy and Research, MS Society of Ireland

12:45 – 14:15 Lunch and networking
14:15 – 15:15 MS Research Programmes

ECTRIMS

Prof. Tobias Derfuss, Department of Biomedicine University Hospital Basel and member of the ECTRIMS Executive Committee

European Union

TBC

Progressive MS Alliance

Prof Alan Thompson, Consultant Neurologist, National Hospital for Neurology and Neurosurgery (NHNN), Queen Square

15:15 – 15:45 Progressive MS: state of the art and prospective developments

Prof. Tobias Derfuss, Department of Biomedicine University Hospital Basel and member of the ECTRIMS Executive Committee

15:45 – 16:15 Coffee and networking break
16:15 – 17:00 Hot topics in MS: looking into what the future can bring

Genetics and environmental factors

Prof. Lars Alfredsson, Karolinska Institute, Department of Environmental Studies

Gut and microbiota

Prof. Hartmut Wekerlee, Max Planck Institute of Neurobiology

17:00 – 20:00 BREAK
20:00 – 23:00 GALA DINNER and ENTERTAINMENT

DAY 2: Saturday, 9 June, 08:45 – 13:30

Time Programme and speakers
08:45 – 10:30 Educational workshop: Health Technology Assessment

Jean Mossman, independent healthcare consultant

10:30 – 10:45 Coffee and networking break
10:45 – 10:50 Welcome and introduction

EMSP President

10:50 – 12:00 Roadmap on Access to Medicines: from market authorisation to reaching patients   

Moderator: Nicola Bedlington, Director, European Patients’ Forum

Panel representatives:

Policy-maker

MEP Katerina Konecna

Patient organisation representative

Pedro Carrascal, Chief Executive, Spanish MS Federation

Payer: National Health Insurance House of Slovakia

Dr. Katarína Kafková, Director

Regulator: Slovak Agency for HTA

Prof. Dominik Tomek , SSFE/ISPOR Slovakia

European Federation of Pharmaceutical and Industry Associations   

Miroslav Lednar, Head Board of Directors, AIFP Slovakia  

12:00 – 12:30 Coffee and networking break
12:30 – 13:00 Personalised medicine: a different angle on treatment options

TBC

13:00 – 13:30 Just Doing It: Life with MS, stories from MS patients
13:30 Closing followed by lunch and departure